Today was a little frustrated. Frankly, I am overwhelmed with the number of meetings I have and the coordination of services I have to manage for my son with Down syndrome. All these meetings require taking time off from work, and I don’t want to use up all my time to attend meetings for my sons services.
He is about to graduate from high school and the school district psychologist wanted to have a Performance Summary meeting and provided dates she was available. While one would wonder why I got so aggravated over this email to schedule this meeting, I understood why I felt the way I did and wanted her to know why I felt the way I did.
So, I asked myself: “Self, what is it that you think and feel you need to impart to these folks and why? Myself answered, with a heavy feeling in my heart, “I want them to understand that I am not just being a disinterested mother; but rather bring attention to how they need to look at their practices and their effect on the lives of parents. I know they have a job to do, and so do I. I want them to consider the amount of time they request families to attend meetings and contact us for formalities that require us to use up time that we really need to use for ourselves, frankly. It is 2016, why can’t meetings and business be conducted in ways that are more working family-friendly? I would like for them to consider these options. Additionally, my son with Down Syndrome is only one of 2 other children I have. How about the time I need to take off for them? How about the many demands on the parents, and looking at the special needs child in the context of a whole family, and how that plays out in our lives?”
So, then I decided to respond back to her email stating: “Sorry. I cannot attend another meeting at this time, because we are overwhelmed with meetings for our son at this time; and frankly, I don’t want to take time off from work for a ‘Performance Summary’ meeting. If the meeting could be held via conference call, there was a possibility of scheduling one if it worked with the schedules of others. Otherwise, a report would suffice.”
I felt like I needed to take a stance for myself and my family today.